Caring for Carers of Children and Young people with Neurodiversity

Embracing Ministries has compiled a list of ways you can help the carers in your congregation feel safe and welcome. This is a work in progress, and new ideas and thoughts are always welcome.

Not all these suggestions will be right for every carer. The best way to find out is by having a personal conversation with the person about their needs and what would work for them.

Remember carers come in all shapes and sizes, including the siblings.

1 John 3:18 says: Dear children, let us not love with words or speech but with actions and in truth.

What a great privilege it is to be able to love one another.

Practical Support

☐ Suggest respite opportunities (e.g., “Parents’ Night Off”, supervised play afternoons)

☐ Provide help with transport when possible – especially for siblings

☐ Offer flexible service times or online options

☐ Create predictable, low‑demand church events that carers can attend without stress

☐ Provide clear, advanced communication about changes to routines or events

A small note about meal trains

☐ Offer meal trains during high‑stress periods – whilst acknowledging there may be restricted food preferences

☐ If specific brands are requested, please follow that request. It may cause a safe food to be rejected if not what the child thought it was.

☐ Ask for specific recipes that the family might like, and make it to those specifications

Emotional & Pastoral Support

Offer regular pastoral check‑ins that are gentle, optional, and non‑intrusive

☐ Provide a safe space for carers to share without judgement

☐ Ensure pastoral staff are trained in carer trauma‑informed and ND‑affirming care

☐ Acknowledge the carer’s expertise about their child

☐ Celebrate the strengths and resilience of carers

☐ Avoid spiritualising burnout (“God won’t give you more than you can handle”)

Community & Connection

☐ Facilitate peer‑support groups for carers

☐ Connect carers with other families who “get it”

☐ Host low‑sensory family gatherings where carers can relax

☐ Ensure carers feel welcomed even if their child cannot attend

☐ Invite carers into leadership or advisory roles if they desire it

☐ Offer groups online for carers to be able to access while not needing to leave the home

Spiritual Support

☐ Provide accessible spiritual resources (audio, visual, short‑form, reflective)

☐ Offer quiet prayer spaces specifically for carers

☐ Create spiritual retreats designed with sensory and emotional safety in mind

☐ Ensure sermons and teaching acknowledge diverse family experiences

☐ Encourage carers to engage in spiritual practices that fit their capacity, not expectations

Communication & Understanding

Ask carers what support they want, not what the church assumes they need

☐ Provide updates about their child’s experience in programs (brief, positive, respectful)

☐ Avoid blaming or shaming language about behaviour

☐ Respect privacy and confidentiality

☐ Ensure all volunteers understand the importance of carer dignity

Supporting the Carer Load

☐ Provide buddies for children so carers can attend worship

☐ Offer “drop‑off” options where appropriate and safe

☐ Create clear, simple processes for program registration

☐ Ensure church spaces are easy to navigate

☐ Minimise paperwork and administrative burden

Advocacy & Empowerment

☐ Encourage carers to share their insights with church leadership

☐ Include carers in shaping inclusion policies

☐ Advocate for ND‑affirming practices across the parish

☐ Celebrate stories of inclusion and belonging

☐ Ensure carers know they are valued members of the Body of Christ

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